Open the door for a world of opportunities 💙 . . . . #disabledandcute #specialneeds #spinabifida #spinabifidastrong #spinabifidaawareness #disabilitypride #disabilityawareness #invisibleillness #disabilityadvocacy #hydrocephalus #chronicillness #hydrocephalusawareness #livehealhy #differentabilities #praisehim #blessedlife #hydrogirl #hydrofam #summerishere #hydrohayleytravels #hydrohayleyvlogs #hydrohayleymerch #chronicloveclub #mentalhealth #spinabeautiful #hydrohayleyvlogs #hydrohayleytravels
Saucy noods for the win! 😋 This dish is easy and delish and can be swapped with whatever veg you have on hand! I used onion, bell pepper, garlic and swiss chard 🌱 I’ll get the recipe for this bowl on the blog tomorrow! ✨ . . . @lotusfoods @lotusfoodscanada @nakedcoconuts @organictraditions #thesunnysideofceliac #celiac #coeliac #celiacdisease #fibromyalgia #autoimmunedisease #invisibleillness #chronicillness #glutenfree #senzaglutine #sansgluten #glutenfreerecipes #noodles #veganrecipes #veganbowls #veganbowl #plantbased #healthyish #plantforward #easyrecipes #freefrom #guthealth #foodasmedicine #healingwithfood #healingjourney #wellnessjourney #glutenfreeblogger #yvrblogger
I may never have a mile under 6 minutes again but I’m never gonna give up on trying to be the best that I can be. Something tells me to hang on, have faith, this is only a chapter in my running adventures 💪🏾 Today was the first day I felt well enough in over 2 weeks to run again. #nevergiveup #beatyesterday #garminfitness #runnersofinstagram #runningmotivation #runningismytherapy #rhuematoidarthritis #invisibleillness
••HOPE•• It is hard to have hope and it is even harder to maintain it. But with everything that life hits us with it obstacles and troubles we need to be true to ourselves and have hope that we are strong enough to battle anything. Whilst I was in limbo of the doctors no knowing and frankly not caring about what was going on with my health, I lost my hope. Then I was diagnosed and people started believing me, that’s when things started looking up. I was also diagnosed with ovarian failure during that time, having a baby is all I ever dream of and I can’t wait to be a mother one day. This is where my hope came back, I need my hope and I will always hold our for hope! 💛💚♥️ #endometriosis #endometriosiswarrior #endometriosisawareness #chronicillness #chronicpainquotes #chronicpain #invisibleillness #invisiblepain #mentalhealth #mentalhealthmatters #mentalhealthawareness #supporteachother #strongertogether #community #advice #endotips #tips #southasian #indian #desi #britishasian #endothecisterhood #instadaily #instagood #pic #instamood #instaquote #followｍe #love #care
Took the scenic route home from Fairfax - with a stop in the woods to barefoot hike and hug some trees. . What you do everyday becomes your life. So I make sure to make time for nature, play, movement and meditation. . If you are a Lymie looking to reclaim your health, join my private Facebook group - Surviving Lyme- Navigate Your Disease and Reclaim Your Health: https://www.facebook.com/groups/927257454356868/ . Dr. Christine Arseneau, Pharm.D. Functional Medicine Health Coach Lyme Support . . . #fairfaxca #fairfaxbolinasroad #natureheals #lymefree #mindfulness #meditation #mindfulminute #healthcoach #lymesupportinc #lymedisease #presentmoment #lymediseaseawareness #lymedontkillmyvibe #lymie #healinglyme #tickborneillness #lyme #lymelife #invisibleillness #lymiesunite #chronicillness #chroniclyme #lymewarrior #lymethriver #lymecoach #chronicfatigue #fmhealthcoach #pharmd #functionalmedicinehealthcoach
#Repost @myelinmelanin with @get_repost ・・・ I miss her. A lot. ❣️ ⠀ ⠀ ⠀ ⠀ #multiplesclerosis #ms #mswarrior #chronicillness #msawareness #invisibleillness #msfighter #thisisms #multiplesclerosisawareness #autoimmunedisease #msstrong #multiplesclerosisfighter #mssupport #spoonie #mslife #mssociety #mssucks #mswarriors #livingwithms #fuckms #spoonielife #curems #msfamily #disability #multiplesclerosissociety #myelinandmelaninpodcast #mstoowhite #becausems #grief ⠀
I will survive.
Why I Wrote Waiting for God: As God comforted me, He reminded me of the countless weary and lamenting faith-warriors who always returned to confidence in His all-knowing goodness, faithfulness, and love. * Through their stories, He strengthened my resolve until my bout with debilitating pain finally subsided. I thanked Him for encouraging me when I wanted to give up. I began writing... * To read more or to find the purchase links, please visit my website (link in bio ) or order your copies of Waiting for God on Amazon at: https://www.amazon.com/Waiting-God-Trusting-Daily-Gods/dp/1627079734 * #faith #Jesus #God #christianliving #christian #Bible #pray #prayer #prayers #praying #WaitingForGod #xochitldixon #spiritualgrowth #chronicpain #chronicillness #invisibleillness #grief #forgiveness #cancer
I may not post every day, or even log on to instagram daily - but I hope my followers know this account is managed by an ally who isn’t just performative publicly for likes (I literally get 13 likes per-post ) #blm #blacklivesmatter #nojusticenopeace #icantbreathe #policebrutality #acab #equality #unity #humanrights #activism #resist #handsupdontshoot #thisisamerica #criminaljusticereform #endmassincarceration #endpolicebrutality #racism #antifa #spoonie #spooniestrong #spoonielife #chronicpain #chronicillness #chronicfatigue #invisibledisability #invisibleillness #disability #autoimmunedisease #fibromaylgia #butyoudontlooksick
If it's OK with the world's chaos, hate, stupidity, ignorance, illness, death, and suffering at the moment...I'll just be over here for a little bit, if you don't mind 🧡❤️
At one with the mess.
I had massage therapy today and my lady did something today called scraping or "Gua Sha". Definitely different for me as I usually do cupping and acupuncture. She explained it as if the tool were a brush brushing out all my knots and tightness and improving circulation. I'm going to be honest with someone with fibromyalgia it did not feel good at all!! BUT I did notice benefits from it so that is exciting. This is a few hours after the treatment she told me I would bruise even worse the next day. I would recommend this if you have tightness and knots. She did this on my hips inner thighs back of legs and my shoulders. #fibromyalgia #endometriosis #chronicpain #invisibleillness #guasha #scraping #massagetherapy #naturalhealing
I’m not doing it for the beauty. I’m not doing it for the glory. I’m not doing it for the attention. I’m doing it because I nearly lost my husband to suicide. - I’m doing it because I survived the worst night of my life, and so did he. I’m doing it because our marriage has frankly, been through hell, but we have been transformed. I’m doing it because we lost his brother to a very similar situation..... and we wish he would have known our whole story, to maybe give him hope that night. I’m doing it for the spouse thinking about taking their life. For the one who thinks life would be better off without them. For the one who messed up and feels there is no turning back. - There is hope. - I am doing @mrsutahamerica to share our FULL story. To air the dirty laundry that others are to scared to let the public see. To let you know YOU CAN make it. It’s worth it to make it. There is nothing you can’t come back from. - If you haven’t had a chance to hear mine and @isaacraylambert story, I would be so grateful if you took a moment to listen. You can find the link in my bio. I truly believe the more people that hear what we have been through, then the right hand and ears it will reach. The ones who need it. Need the hope. - I leave tomorrow for pageant weekend. (Only 45 tickets left ) There I will be sharing my story. The one about the power that Love can have, when your deciding if it’s worth it to Live. ❤️
Was immer auch gut für deine Seele ist, mach es! [Netzfund] ------------------------------------------------------ #health #mentalhealth #mentalhealthawarness #toptags #mentalhealthmatters #mentalhealthday #mentalhealthrecovery #mentalhealthwarrior #mentalgains #bewell #invisibleillness #healthandwellness #mentalstrength #depression #anxiety #mindfullness #healthymind #help #mind #mindset #healthylife #stress #mentalhealthsupport #control #recovery #overthinking #bipolar #wellness #livingfree
There are only so many angles one can take blood-draw pictures at before they start to look repetitive, but here we are again. . (Image description: brown haired white woman in a dinosaur mask is sitting in front of a blood-draw set-up. ) . #autoimmue #undiagnosed #chronicallyIll #chronicIllness #invisibleIllness #spoonie #spoonieLife #bloodwork #autoimmuneDisease #autoimmunePain #autoimmuneLife
#코인세탁소 #셀빨래방 아침부터 또 #폭풍빨래 ㆍ #지겹다지겨워 ㆍ 어제 새벽에 또 간지러워서 깸😭 이불건조대에 태리 하네스랑 리드줄이랑 쿨조끼를 말리느라 널어놨었는데 안닦고 그위에 토퍼를 햇빛건조한다고 널어놔서 그런것 같다😢 아니면 베란다 문열어놨을때 태리가 냄새맡으러 가서 그런건지.. 전자쪽이 더 확률이 높은듯 토퍼 2개 깔고 자는데 1개만 오염된것 같지만 일단 다 #세탁중 ㆍ 차에 다 밀어넣어서 들고와서 #빨래 ㅡ #thyroidcancer #thyroidcancersurvivor #papillarythyroidcarcinoma #UC #invisibleillness #ulcerativecolitiswarrior #inflammatoryboweldisease #IBD #spoonie #spoonielife #invisibleillness #자가면역질환 #갑상선암 #궤양성대장염 #염증성장질환
This is the most accurate thing I have ever seen - - - - - - - #endosisters #endometriosisawareness #endometriosis #endowarrior #pcoswarrior #pcosstrong #pcosawareness #cysters #psoriaticarthritiswarrior #Psoriaticarthritis #arthritissucks #spoonie #spoonielife #spooniewarrior #chronicfatigue #chronicpainwarrior #chronicpainsucks #chronicillness #womenshealth #mentalhealth #idontlooksick #invisibleillness #babeswithmobilityaids #love #beautiful #effyourbeautystandards #bodypositive #curvyaf #strongereveryday
☆ "It's all in your head" ☆ "Have you tried exercise" ☆ "Everybody feels sick and tired sometimes" ☆ "I know how you feel, I once hit one toe on the table" ☆ "You are analyzes too much" ☆ "Therapy, have you thought about it" ☆ "You just feel too much" "Lose weight" ☆ "It's just imagination" ☆ "Stop using gluten/dairy/sugar/fat/coffee/foods in general" ☆ " You can't be in pain ALL the time, that's impossible" ☆
I know how overwhelming it can be with the overload of information out there and our endless to-do lists 📝. Sometimes it feels easier to bury our head in the sand (or under the duvet cover 🙊 ). 🛌 I remember when I first got diagnosed with my autoimmune disease, I didn’t know where to even start on my healing journey.🤷🏻♀️ It wasn’t just about the different information on foods, but also how to change my mindset and lifestyle- which I knew were equally important. It seemed like an impossible task, and in all honesty, I wanted an overnight fix, that magic pill💊. But, the gift of any challenging journey you embark on, is who you become in the process... ❤️ From my own experience, I can share with you that it really is the small things we do every day that result in our biggest changes. So, tip-toe if you must, but don’t give up. 💪 #smallsteps #smallstepseveryday #dontgiveup #crawlifyoumust #smallstepsbigchanges #tiptoe #healingjourney #healingandwellbeing #kerryoconnell #holisticcoach #goals #dreambig #lifecoach #createyourlife #chronicillness #invisibleillness #autoimmunedisease #wellness
💪🏻🌱 #Healthy #snacks for dinner - can’t lose! (Looks so fancy but it’s literally just random snacks I have left 🤣 ) • • #kidneydiet #kidneyhealth #kidneywarrior #kidneydisease #minimalchangedisease #nephroticsyndrome #multiplesclerosis #ms #mswarrior #msawareness #multiplesclerosisawareness #chronicillness #autoimmune #autoimmunedisease #invisibleillness #chronicpain #fatigue #brainfog #migraine #anxiety #depression #fibromyalgia #antiphospholipidsyndrome #lupus #edema #spoonie #weightloss #weightlossjourney • • @Chronically_Kristi • 💪🏻💚🎗⚔️🧡🌱🌤
#돼지김치찌개 이것도 #과정샷 만 있네 ㅡ #집밥 #homecookedmeal #sugarfreelife #dairyfree #dietforibd ㅡ #thyroidcancer #thyroidcancersurvivor #papillarythyroidcarcinoma #UC #invisibleillness #ulcerativecolitiswarrior #inflammatoryboweldisease #IBD #spoonie #spoonielife #invisibleillness #자가면역질환 #갑상선암 #궤양성대장염 #염증성장질환
Big day at work yesterday = bad migraine today 🤕 So glad I have my ice towel, it’s actually a lifesaver! It’s amazing how quickly my @koldtec #icetowel helps relieve the pain & reduce the dizziness & nausea I get with Migraines. Originally I got it to help with heat sensitivity & stop me overheating during summer (which it works great for ) but I’ve also found its awesome at treating my migraines & headaches. Definitely one of the best investments I’ve made for my health 👍💧 They now have headache HALOs as well which are designed specifically for this 😍 I really need to get one of them 😊😱 . . #migraine #headache #koldtec #koldtecicetowel #migrainerelief #heatsensitivity #msawareness #multiplesclerosis #chronicillness #bestbuy #health #invisibleillness #medicalaid #engineeredice #ms #coolingscarf #painrelief #restday #migraineawareness #nausea #dizziness #coldtherapy #instadaily
This COVID pandemic feels overwhelming with no end in sight. I think it’s easy to fall into worst case scenario thinking, from getting sucked into the news to the very real disturbing things that are disproportionately affecting disabled and BIPOC communities. That being said, I think it’s of utmost importance that we are caring for ourselves and finding moments of joy through all this! This day was joy for me. Being with friends (socially distanced on the water ), moving my body, being in nature, taking deep breaths, these are things that I can do right now to care for myself and reconnect to joy. What are some ways you are finding joy?
#eucalyptus in my #powderroom #halfbath never enough #flowers #foliage in your home #freshflowers #plants are food for the #soul and always make your house feel like a #home even if it’s in your #dunny Lol #frenchcountrystyle #farmhousedecor #farmhouseglam - deepcleaning thanks to my #supportworker s Thanks to #covid19 it’s one step forward two steps back . My #crps has been really angry lately so much noise it’s been so hard to calm it down. I used my @choosemuse during a major flare actually helped bring my #pain down after a couple of days I was back to baseline and I haven’t been there in a while so that was exciting going to be using it to help with my #disassociation of my right limb hopefully next week with my pain coordinator- so many people want me to tape it so see how it goes ,it’s been helping me with #crps before they invest that kind of money . If my hair isn’t a birds nest and I can get a support person to wash it for me I’ll aim to film my journey with muse and crps I guess it would be beneficial for myself as well helping others gives me purpose and makes me feel good I’ll have to do a separate muse post. #crpswarrior #crpsfighter #fibromyalgia #chronicpain #chronicillness #painsomnia #allodynia #invisibleillness #mentalhealth #burningpain #crpsawareness
I’ve gone from one day at a time, to one step at a time to one breath at a time. • Times are seriously tough. Not only are we grieving our old lives, life as we know it is still playing out. With every hurdle, every doctors appointment/zoom, every weird new way things work and every heartbreak 💔 • I am usually one with so many words and with words I find my greatest solace. But at times finding the words when you are physically, mentally and emotionally drained is difficult. • So I took a minute and am taking minutes wherever I can to navigate heartache, living through a pandemic, living through a pandemic while being chronically ill and having little to no access to usual physicians who keep symptoms in check. Working out how to manage in this new normal and trying really hard not to think what has been and look to what will be....after another 6 week lockdown 🤯 • If you need a minute take a minute, everything will be waiting for you when you come back up for air! Big love to everyone going through it at the moment. Be kind to yourselves and keep talking to each other ❤️
I need to remember this more 😫 . I am being so hard on myself this week! James is teething and has had a couple of allergic reactions. I'm using every last spoon being everything he needs and I still fail to recognise that when he is in bed it is okay to rest! . I am flaring and I know that the best thing I can do for him when he is in bed, is rest so I am at my best for him the next day. But I insist upon doing things around the house and bunch of other stuff that can definitely wait! . I need this reminder today! . . . . . #chronicillness #chronicillnessawareness #rheumatoiddisease #rheumatoidarthritismama #rheumatoidarthritiswarrior #thespoontheory #rheumatoidarthritis #spoonie #spooniemum #spooniemom #chronicpain #chronicpainawareness #chronicfatigue #flareup #flareupssuck #chronicfatiguesucks #spooniemummy #firsttimemum #invisibledisabilty #invisibleillness #butyoudontlooksick #spooniequotes #spooniesofinstagram #chronicillnessquote #chronicillnessquotes #chronicallyawesome #chronichope #outofspoons #hiddendisability #autoimmunedisease
𝕀 𝕔𝕙𝕠𝕤𝕖 𝕝𝕚𝕗𝕖 𝕨𝕚𝕥𝕙 𝕒 𝕤𝕥𝕠𝕞𝕒 💕 . On May 27th, when I was instructed by my Gastro to go to the ER after hearing how unwell I was. I was greeted by my surgeon who shocked me with the news of life changing major surgery in two days time. . As if this wasn’t big enough, I was then told he was of the opinion we should go for JPouch surgery because in his words, it was “worth a shot.” This came as a huge shock to me because I didn’t even think this was an option for me having Crohn’s disease. . The decision was pretty much made for me, and so plans were quickly arranged for Jpouch surgery on Friday the 29th of May. That night, I lay wide awake in my hospital bed, unsettled and unable to sleep. When I first had my ostomy surgery in December and first heard about the Jpouch, I found myself deep in research, even though I was told this was never an option for me. I watched videos, read blogs, found myself deep in Instagram profiles. Looking back now, I’m so glad I had done this so I could make an informed decision now. . This was a life changing, life long decision I had 48hours to make. I had spent 6 months with my ileostomy, I knew life could be good with it. I knew it wouldn’t hold me back from anything I wanted to do. Jpouch was unknown territory. It meant even more surgery, it meant diving in and hoping for best. . I woke up in the morning and knew what my answer was. I wasn’t willing to live one more day with horrible urgency, one more day of humiliating incontinence, one more time putting my faith in something that may fail me. I informed my colorectal team first thing. . This isn’t to say this is the 𝙧𝙞𝙜𝙝𝙩 choice. If you’ve gone down the path of Jpouch or intend to, that’s awesome and I totally get it. I understand not wanting to live with the “what if.” I consider you incredibly brave and envy your optimism. Everyone is different and by all means, you do you. But for me, I knew this was right. It’s you and me forever little bag on my side 💛 @coloplast #ostomygirl
• OPEN LETTER TO LOVED ONES WHO DON’T UNDERSTAND CHRONIC ILLNESS - PART 1 • I was once in this situation and you probably could be in it also if you have an illness that others cannot see. You feel it inside of your body, you know something is wrong but it’s hard to make others understand it. And often family and friends can lack providing support and tell you things like: « It’s all in your head » « There is nothing wrong with you » « You are just lazy ». • Those sentences, coming from the people who are supposed to love you and support you have such a negative impact on a chronically ill person, who is already so fragile. There is nothing worse you can do to someone ill then making them feel rejected and abandoned by the people that are supposed to be there for them no matter what. • Let me explain you what is a « lazy person ». A lazy person is someone who is staying on the couch all day long, watching tv or playing video games, eating chips, burgers, pizza and drinking soda...That my friends, is a lazy person. But someone who is fighting to have their life back, who is reading and researching everything they can to understand what is happening in their body, making drastic changes to their diet, eating unprocessed food, taking the bit of energy they have left to cook and prepare healthy meal and spending crazy amount of money on real food (yes because veggies are more expensive than a fast food )...That my friends, IS DEFINITELY NOT A LAZY PERSON! • Don’t you think that this person would prefer to go out with their friends, spend time with their family, go to work, play with their kids instead of just staying home exhausted and trying to figure out what is happening to their body? • It’s not because you don’t see something, that it doesn’t exist. What about when you have a headache or a bad migraine? If you do a blood test, is it going to show? NO. But it’s not because you cannot see it, that you don’t feel the effects on your body. So if it applies for that, don’t you think that it can also apply to fatigue, digestive issues, vertigo, brain fog, burning sensation, neurological symptoms, body aches and much more? • Stay tuned for Part 2 tomorrow...
July is Disability Pride Month. In spite of spending good portions of the last ten years debilitatingly ill, it took me a long time to identify as a member of the disability community. In spite of the fact that I definitely wasn’t “able-bodied” anymore. In spite of the fact that I needed disability accommodations at school and at work. I still felt like I wasn’t disabled “enough” to claim it. I didn’t want to infringe on a community of people who, many of whom, had stories of suffering and discrimination I couldn’t imagine. I bought into the societal farce that disability had to be visible (like using a mobility aid ) to be “real.” But then I started talking to people within the community, and turns out? They’re not interested in gatekeeping. A disability, as defined by the ADA, is a physical or mental impairment that substantially limits one or more major life activities. Hearing that, I was like oh, DUH, 🙋🏼♀️🙋🏼♀️🙋🏼♀️. And I’m so glad I did. Embracing the word “disabled” has meant embracing a community and a history of amazing activists who fought to make sure I have the disability accommodations I needed, long before I wanted to say out loud that I had a disability. That fight continues on, and I promise, as part of that community, to be a part of that fight. And to my disabled and able-bodied friends alike, I hope you’ll mark the occasion by watching “Crip Camp” on Netflix and paying homage to those early activists who made it possible for people like me to successfully finish college and hold a job with the accommodations we need and deserve. • • • • [image description]: Sam, a blonde woman, sits in a chair with an IV catheter in her arm. She is wearing a chambray jumpsuit and a pink sheer wrap over it. She has a rose quartz necklace and a pink grid mask on. She has two clips in her hair.
This shouldn’t need to be said but sadly many of us have common ground because we’ve heard these five little words - it’s all in your head. . Chronic illness is a battle in itself, we shouldn’t have to battle to be heard and believed too. . Three doctors in a row told me there was no physical reason I was unwell and in fact my negative attitude was the trigger. . They told me I needed antidepressants and after hearing the same message three times I started taking them – I must need them if three different doctors say so, right? 🤷🏼♀️ . I didn’t need them, I just needed to know why I was unwell and have a doctor take me seriously. That is not too much to ask. . Mental illness alongside chronic illness is never to be taken lightly of course. But it shouldn’t be the immediate response to all symptoms. . Thankfully I maintained confidence in myself and took matters into my own hands. There were a number of reasons I was unwell and since diagnosing these my health has improved drastically. . I dread to think how I would be right now if I had listened to those three doctors. I have always been a strong character so it was fairly easy for me to ignore them. Not everyone is like that though and not everyone is in a position to fight the system. . Being continually told things are in your head, your test results are all fine, there’s nothing physically wrong with you can be damaging on so many levels. . I’m here today to tell you that you’re not alone and this is not all in your head. You deserve to understand why you’re unwell and to be given the chance to get better. You do not deserve to be dismissed. . Here’s a few tips for standing your ground with difficult doctors: . 👩🏼💻 Research and prepare so you can advocate for yourself to the best of your ability . 🤔 Preempt what the doctor may say so you have a response . 👯♀️ Take a companion, doctors are less likely to fob you off if there are witnesses . 🧚🏼♀️ You know your body best, always trust your intuition . Have you heard these five little words before? What was the situation and how did you move forward from it? . Here for you always 💕🌸
“I use a cane now. I cannot get out of bed, off the couch or from a seated position unassisted. My husband gets me dressed in the morning. There isn't a second of the day that goes by that I'm without physical pain and discomfort. But none of that even matters, because the emotional pain of knowing that I can't start another fertility treatment until after I heal from my next surgery is the rawest form of torture I've ever endured. Fortunately, and only because my condition is so dire, my surgery is slated in the upcoming weeks. Although anything can happen, and nothing about this situation feels secure as cases continue to rise exponentially. You see, as long as COVID-19 continues to inundate our hospitals, our health will continue to be in flux.” THIS IS WHY I NEED YOU TO WEAR A MASK FOR ME - my latest story on the blog. The link is in my profile.
I have had this thing with chronic illness where I don’t seem to fully understand the chronic part. Like, I always somewhat expect that it’s going to go away. It’s not been just hope either it’s been ignorance. I think it’s vital to remain hopeful that a cure could come, however I’ve done myself no favours by refusing to evolve away from the naive concept that if I spend my whole self on getting treatment and changing my lifestyle and finding resources, I can cure myself. All along the way I’ve remained anticipatory of the diagnosis or the drug or the therapy that would make things better. I’ve never seemed to fully get my head around the fact that this shit is just normal now. And, as well as it being normal, it’s actually okay. I keep waiting for the day that I don’t feel like shit all the time and things will truly feel painless and energised and healthy. I’m now realising that kind of panacea doesn’t exist. Not yet for my conditions anyway. It’s proving to be a mindfuck that I’m going to have to pull myself together and figure out a way to be disabled any live my life at the same time. I’m sure I could spend eternity denying my ability to do both too: living in this quasi state where I tell myself I couldn’t possibly go out and make a life for myself because of my health problems; but I don’t want to. I have to stop banking on a miracle, and that’s what a cure would be — a miracle. I’m starting to accept and move forward. Not “despite” being sick. Not by “overcoming” my disabilities. Just by swallowing my undeveloped mindset that you have to be completely healthy to truly live. I haven’t been making the most of what I have even if I thought I had a good reason. I’m ready to try harder at reaching for more. . . . Image: Cait is parked in their wheelchair at a railway crossing near evergreen bush. They’re sat up straight looking off to their right. They’re dressed in bleach leggings, a yellow T-shirt, and tan leather work boots, with a gold beanie and denim/leather jacket.