This has felt like the LONGEST week and I for one am glad it’s OVER. I’ve been having lots of health issues this week and I’ve been sick a lot which has just taken a toll on me emotionally. BUT I’ve been so happy to have my new ✨backpack✨ for O2-D2. Its made doing the little things SO much easier. So while a lot of this week has been really shitty, I’m trying to focus and remember the good and little wins. Just focus on the step in front of you. Not the whole staircase 🖤✨
This week on Lake Michigan. I included a view from higher up on some stairs across the street from my usual spot.
hi! when i was hospitalized three times for undiagnosed lupus my skin was very messed up. my skin was so itchy, red, and blotchy that they had me on IV benadryl and nurses had to rub calamine lotion all over me. after i left the hospital (still not diagnosed ) my skin started to peel off. my mom had to vacuum behind me because i kept flaking off. i took oatmeal baths and my mom would exfoliate my whole body with a scrub. after all this finally went away and i got new skin, it was never the same. i have itching fits out of nowhere, my skin is so sensitive, it’s basically like baby skin. these are the products that help me and that i do have any reaction to so i thought i would share if any of you other lupies are struggling with your skin. 💜
Facts! 👏 👏 👏 #dysautonomia #dysautonomiaawareness #dysautonomiawarrior #potssyndrome #potsawareness #pots #invisibleillnessawareness #invisibleillness #disability #disabilityawareness #invisibledisability #butyoudontlooksick #notaburden #chronicillness #chronicpain #spoonie #spoonielife #spoonies #spooniestrong #spooniesupport #spooniesisterhood #chronicillness #chronicpain #chronicfeed #potsie #potsielife
Make sure you’re using your cold packs safely! ❄️ 1. Inspect the skin and make sure there aren’t changes in sensation (if you have numbness already then this isn’t the best idea, please see my last post about contraindications ) 2. Use a barrier between the skin and the ice pack, like a towel or pillow case 3. Relax in a comfortable position and place the ice pack for up to 15-20 minutes 4. You can combine this technique with a compression wrap and elevating the body part to combat swelling If you’re placing an ice pack for someone else, make sure they can communicate or signal any signs of discomfort, especially if you won’t be by their side the entire time. 🥶 Good luck, take care, and safety is first so feel free to ask me any questions!
Infrared Light Therapy can reduce inflammation, increase circulation and promote healing. 🌈 - - - #chronicpain #infrared #chronicillness #spoonie #Infraredlight #invisibleillness #spoonielife #pain #chronicpainwarrior #infraredlighttherapy #butyoudontlooksick #health #chronicpainawareness #spoonies #chronicillnessawareness #selfcare #painrelief #painmanagement #invisibleillnessawareness #chronicpainlife #healing #spooniewarrior
I was reminded of this while on vacation. I didn’t sleep much while planning our wedding, so afterwards my body needed a break. One day I was too tired yo lay out in the sun for a pool day. It reminded me of all the timesI said no to do something when I was sick. It’s not that I didn’t want to. I just physically couldn’t. So here’s a reminder to our friends. So many times when I would say no,it didn’t mean that I didn’t want to do that with you. It really just meant that I physically couldn’t. Anyone else with me on this? 🙋🏻♀️ _________ #spoonie #lyme #ehlersdanlossyndrome #eds #multiplesclerosis #endometriosis #lupus #endowarrior #gastroparesis #ibd #ibdwarrior #lymedisease #fibro #fibromyalgia #fibrowarrior #lymewarrior #cfs #fatigue #autoimmunewarrior #autoimmune #disability #mswarrior #invisibleillness #crohnsdisease #crps #spoonies #thisismeinvisiblysick #chronicpain #chronicillness
Welcome to the Hotel Hell. Check in time is now. Check out time is never. • • ID: a classical painting of two women, one has her arm around the others shoulders. The caption reads “Me taking a newly diagnosed spoonie under my wing”, and the text bubble reads “welcome to hell” #chronicillness #chronicallyill #chronicillnessmemes #chronicillnessmeme #spoonie #chronicillnesshumor #humor #spooniehumor #spooniememes #art #artmemes #classicalart #classicalartmemes #lol #laughteristhebestmedicine #spoonie #spooniestrong #spooniehumor #spoonies
20 minutes after treatment vs 3 hours after treatment 💉💉 - Little treatment update from your tired gal 💤 - So, today was the second round of my new Immunotherapy drug, Ustekinumab aka Stelara. If you’ve followed my journey or are on this drug too you’ll know the first one was an infusion within the hospital, today I had to go back into hospital to go over administering it myself, I administered the humira for years myself but this had always been a pen type injection, but now I’m going to have to physically put the needle in myself and it is actually freaking me out. I’ve been prodded and poked at with needles, surgeries, endless test for over ten years but there is just something about doing it myself that is freaking me out 🥺🥺🥺.. soooo I let the IBD nurse do it, it doesn’t sting what so ever, which I found Humira stung for me even after they took the acidic ingredient out of it to help. So I’m happy about this😍 - The hospital are being amazing and offering me to go back in each time until I’m comfortable but I know il never be comfortable unless I just take the plunge and crack on with it (any tips are absolutely welcome ). I couldn’t even administer my own blood thinners post surgery ffs 😒 - They’ve confirmed the next steps are tests at the beginning of October to see if I’m responding and then deciding wether we are going to trial 8 or 12 weeks to start with, hopefully it’s 12, as that means I’m responding fully for now, fingers crossed!!!🤞🏼 💉 - I’m honestly hearing so much positivity around this drug, even from the IBD nurses, it seems to have a higher percentage when it comes to success rates and has apparently just been made available to all of you UC warrior too hoooray🙏🏼❤️ - I’m defoooo remembering why I used to take my previous drug at night as honestly it just wipes me out, that along with my mask today has had me so disorientated, I legit walked into a shop display ✌🏽 Whenever I have a mask on I just feel really off balance 🤪 - Quick update for the instagram diary, it’s nice to create a timeline as the past is a complete blur with dates 📖 - I’ve run out of characters so il do a crohns update soon! Don’t forget, I’m here to help ❤️❤️❤
Posted @withregram • @hennegroup Contemplate the might inside . . . . . . . . . . . . . #spoonies #spoonie #migraines #chronicfatiguesyndrome #chronicpainwarrior #mentalhealth #chronicpain #invisibleillnessawareness #butyoudontlooksick #spoonielife #nononeunderstands #chronicfatige #hurtinginside #cantwalk #brainfog #chronicillness #chronicpain #invisibledisability #autoimmunedisease #butyoudontlooksick #babewithamobilityaid #fibromyalgia #chronicallyawesome
Drop a 😒 if you have had someone tell you to "just eat more" A client came to me, underweight, tired and frustrated. She had wanted to gain weight for YEARS but the only advice she ever got was "just eat more" That's it 🙄..."just eat more" She didn't know what "more" food was ...she felt like she was eating all the time! Why wouldn't she gain weight??? I'll tell you why. All those people who told her to just "eat more" never bothered to ask her anything else about her lifestyle or appetite. They didn't ask about her stress levels, her stomach issues, or her lack of cooking knowledge. In my program, we get to the bottom of why you are "still skinny" and I meet you where you are so you can ACTUALLY gain weight. My September program is starting soon, but I am still accepting applications so if you are ready to finally be heard so you can gain the weight you want apply at the ✨link in my bio✨ #tooskinny #tooskinnytho #underweightproblems #underweight #girlgains #girlgainz #growingupskinny #getgains #getthick #getthicc #weightgainsnacks #weightgainjourney #weightgainmeals #bootygainsplease #weightgainideas #bornskinny #naturallyskinny #skinnyshaming #skinnytostrong #skinnytostrongjourney # #bootybuilding #bootygains 🍑 #emetophobiarecovery #spoonies
Hear from our friend Bianca, as she shares how she’s building her confidence this month by keeping one promise to herself: to share her story often and freely…even though her story might not look like what she thought it would. ⠀ JOIN OUR FREE PROGRAM! ⠀ The Focus Fix is helping over 1,275 chronic illness warriors grow and live intentional, purposeful lives, and you’re invited to join! ...and it’s all 100% FREE! ⠀ Sign up here: ⠀ peoplehope.org/focusfix
*Of course, if you are disabled and feel comfortable with/empowered by this terminology then this does not apply to you* It was only when I stopped 'fighting' my disability that I could begin to accept it and start living my best disabled life. This rhetoric has not been helpful. My body is not a battlefield. - ID: The problem with war-based terminology (fighting, battling etc. ) when talking about disability/chronic illness 1.It implies that people have control over their disability and just need to 'try hard enough'. 2. It suggests that disability is something to conquer. You must win OVER it not WITH it. 3. It distances the person from their disability, implying that it isn't/shouldn't be part of them. 4. It positions being abled as the best outcome (i.e winning ) instead of acceptance, adaptation and a wonderful disabled life. - #disability #disabled #disabilityawareness #disabledandproud #disabilitypride #disabilityisnotinability #disabilityjustice #disabilityinclusion #chronicillness #chronicillnesswarrior #spoonies #spooniesunite #disabledlife #chronicpain #eds #edser #chronicfatigue #arthritis #invisibleillness #sickandtired #disabilitylife #wheelchairlife #unchargeables #nospoons #spooniesupport #chronicillnesscommunity #chronicillnessfighter #chronicallyill #disabilityadvocate #disabilityadvocacy
.Ƹ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄Ʒ. She acts like summer and walks like rain, reminds me that there's time to change. .Ƹ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄ƷƸ̵̡Ӝ̵̨̄Ʒ. . . . . . #purplehair #colours #soft #buckethats #florals #flowerphotography #blooming #face #september #lyrics #meitu #paleskin #imtired #💚 #spoonies
You are not alone in your fight. It’s okay if you feel overwhelmed, scared or anxious. If you do, you’re not alone. Invisible illnesses are extremely difficult. Thank you @how .u.feeling for this reminder. #differentandable #chronicillness #spoonies #spooniesupport #resilience #invisibleillness #invisibledisability
🎉 ENROLLMENT OPEN - ONLY 3 SPOTS LEFT🙌 I am super excited to be launching my signature Good Day Healing program. In this improved round I offer ONLY 5 SPOTS for women (with a massive discount ). ✅Good Day Healing will take you through literally EVERYTHING you need to know about healing your MIND & BODY in 90 days to break free from worry & pain and GET YOUR LIFE BACK I have had women heal & ditch their meds using the holistic techniques that I put together from years of experience. They have reported having improved symptoms, gained energy and stopped anxiety for a TOTAL mindset shift with their feeling FREE in their body to start living the life they were missing. 👉For this launch I am doing first-come, first-serve. Once the spaces are gone, they’re gone, so if you are thinking about it, be sure to message me right away! 💥 You will get full access to me as I guide you through learning what patterns have contributed to your illness and how to rewire your brain & heal emotions to get back to balance&health. The program includes 1:1 calls with me, step-by-step guides to EVERY health protocol, and health tools that you can utilize for the rest of your life. If you are ready to heal, stop seeking answers and learn how to become symptom-free so you can make changes that last your entire life, this is perfect for you. A few examples of what you will learn inside Good Day Healing.. ✅ Lifestyle hacks & changes to jumpstart your healing ✅ My custom 7-step rewiring method that instantly changes the signalling of the brain from illness to vitality. It’s helped tons of women to eliminate or reduce symptoms, to build confidence in their bodies ✅ Emotional healing to be more balanced than ever before ✅ How to use your intuition & guide energy, to become calm, at peace with yourself & relationships > never feel drained by others ✅ Uncover & stop the limiting beliefs that have been blocking your healing ^^ And that’s literally just the tip of the iceberg… Believe me - this program is THE #1 most comprehensive healing program you will EVER come across. If you want in, 👇comment saying “READY” and you’ll get DM'd next steps🌅
WHAT CAN I EXPECT IN THE FIRST 6 MONTHS OF #BVT WITH THE HEAL HIVE? This is one of the big questions we’ve seen in our DMs as we get closer to registration for our Fall Semester of courses at @thehealhive (check your email tonight if you’re on the pre-registration list! ). [SAVE this post if you’ve been wondering, or SEND to someone who should consider our BVT Course] We asked 60 of our students to share the results of 6 months of #beevenomtherapy with the #healhivesystem ... and if you’re not already a bee-liever, you might be surprised by the results! Seeing our students take their health back after years lost in the hell that is #chroniclyme is nothing short of inspirational 💓🐝💓 You can find more results from our member survey in our free guide to Bee Venom Therapy, available for download at the link in our bio. Already stinging? Tell us your story! Share your biggest wins in the comments ⤵️
🥰 #fnd #functionalneurologicaldisorder #chronicillness #butyoudontlooksick #invisibleillness #invisibleillnessawareness #fibromyalgia #chronicfatiguesyndrome #cfs #chronicallysick #disabilityawareness #disability #spoonie #spoonielife #spoonies #spooniesupport #disabledblogger #disabledlife #personalblog #myalgicencephalomyletis #chronicpainwarrior #mecfs #chronicallyme
I DO know who needs to hear this. It’s ME. And it’s likely you... . Happy Fall Ya’ll. Tomorrow starts a beautiful new beginning. Cooler weather is coming. Get your damn pumpkins out. Paint naked or whatever is your therepy. Don’t give up. On yourself. Or your loved ones. Hugs. . . . #falliscoming #fallishere #friyay #keepon #bethegood #humor #healthylifestyle #humerus #bone #funnyshit #bonebrothheals #bonebroth #bonebrothdiet #spoonies #spoonielife #spoonie #fitmom #healthyfood #femaleentrepreneur #laughmore #funnybone #liveyourbestlife #guthealing #guthealth #leakygut #leakygutsyndrome #athlete #athletes
when you wonder why your head hurts—a visual series & partial explanation. #myheadhurts #nowonder #ouch #ow #headaches #headachessuck #isthiswhy #metaphorically #speaking #spoonie #spoonies #spooniesupport #collectivesuffering #lifeishard #2020isrough #planter #planters #broken #heads #headsofinstagram #poetry #poems
Day 17: Taking the Day Off Living with chronic illness is hard work. Every day you dust your knees off and get up again but some days you just want to stay there and weep. I don’t always acknowledge how hard it is. When it’s too much it’s often tempting to stubbornly (and resentfully ) press on. When really what you need is a sod it day. Honouring the feeling that this state of affairs is completely unfair and unreasonable and you refuse to accept it. A sod it day gives permission to rebel in the way you need most. You’re allowed to rant without ending on a positive note, feel very sorry for yourself, ask for more sympathy (but perhaps less company ) and the day off. To be used for whatever combination of rest and escapism you need. The important thing is to let yourself feel what you feel and take pressure off to be certain ways or do certain things. 🍂 Honour all emotions that are there, the anger, sadness, hopelessness 🍂 Give yourself permission to retreat 🍂 Do whatever lets you feel rebellious for the day, forget about pressures . . .
☹️😕😑😏😁 How did this become a measurement of pain? Living with chronic pain, specifically #fibromyalgia , which has over 200 symptoms, is wearing this face: 🥰 while feeling this: 🤮🤢🤒💩🤖👽☠️🥶🥵💉⚰️🔪🧘⚡️🦥🐳😵🥱🥱🥱😴🥴🥴🙄🤔😓😥😰🤬😒😞 Add bipolar disorder on top of it, and we’re all on the 🎢 of pain, mood, choices, consequences, and least of all faces. In a fibro flare, laying in bed is an ocean storm of pain. Getting up and doing things is just as painful, but our brain has the ability to get distracted from some of the pain, physically relieved from some, but make some other pain worse, don’t forget some bonus fatigue for effort! Emotional pain is the same. Negative emotions and positive emotions are in a constant wave, seeming to balance each other out, but that’s not how we look at them. The truth is, without the negative stuff we couldn’t even know what the good feels like. When you are super sick and come out of it, you probably still feel like crap but you don’t even know because you feel so much better! 😝 Feels like a million bucks to us #spoonies ! What if you could practice feeling like crap and become so pro at it that you never had to resist it again? Never had to numb it or react, which we all know makes us worse in the long run? That’s what I’m a pro at now! Feeling! Not just physical pain but emotions. I practice them like I practiced dancing when I was on drill team, musical instruments when I was in a band, and editing when I first learned photoshop. I practice like any athlete would - so I can immediately go from the reaction to the processing part. I can teach you how to practice, too, so you can stop overthinking, overeating, overdrinking, or whatever it is you’re buffering those negative emotions out with. They’re not going anywhere. They’re just getting number for a minute and coming back layered by more. When you get better at feeling the bad ones, you are better at everything in life including feeling BETTER all around. You don’t have less negative emotions you’re just better at handling them. Does that sound...cont. in comments...
🌻—mental health check—🌻 Good morning beauties! How are you guys feeling today? Its finally Friday and I am having a way better day than I did my week 🙌💛 But I wanna know about 𝙮𝙤𝙪. If you don't feel like going into the specifics, you can leave a heart emoji with how you're feeling and ill know how to look out for you with messages/prayers/good vibes/and extra virtual spoons 🤗 If you are comfortable going into it, let me know! You can always comment bellow or dm me. Heart emoji for how you are feeling: ❤️ - I’m doing great 💜 - I’m doing only okay 💚 - I’m starting to struggle 💙 - I’m having a hard time 💛 - I need someone to talk to 🧡 - My DMs are open for anyone ° ° ° #chronicpain #chronicillness #spoonie #invisibleillness #fibromyalgia #spoonielife #chronicfatigue #pain #chronicpainwarrior #anxiety #chronicillnesswarrior #autoimmunedisease #endometriosis #butyoudontlooksick #mentalhealth #depression #health #chronicallyill #ehlersdanlossyndrome #crps #eds #arthritis #chronicpainawareness #fibrowarrior #pots #fibro #endowarrior #endometriosisawareness #spoonies #bhfyp
Sometimes there are changes in our life that we would not and have not chose. You may be diagnosed with an illness, be facing redundancy, going through a divorce or separation or maybe suffering a bereavement. Whether we choose these things or not we have to find a new way of living. Before we can move forward into our new way of being we have to grieve for our old way of being. It is a process we must undertake, there will be shock and denial, anger, depression and detachment for others, eventually telling others your story, before finally.....there will be acceptance. It can seem like life is never going to get any easier when you're stuck in the middle of the process but one day you will find joy in your new way of being. #grief #griefsupport #bereavement #therapy #counselling #cbt #newbeginnings #sayinggoodbye #life #pain #LOSS #divorce #seperation #depression #anxiety #stress #chronicpain #chronicillness #invisibleillness #spoonies #rheumatoidarthritis #fibromyalgia #Ms #musculardystrophy #COPD #butyoudontlooksick #itsoktonotbeok #itsoknottobeokay #HelpIsHere #talkinghelps
Stainless Steel Spoons!🍴 •Limited Time Offer (119 for 6 pieces ) •Made from 100% High Quality Grade Stainless Steel •Well designed and having Smooth Edges DM now to order!🔥 . . . . . #amalgamate___ #cutlery #cutleryset #vintagecutlery #spoons #spoonscafe #spooncarving #spoonies #stainlesssteel #stainlesssteeltumbler #kitchenware #kitchenutensils #utensils #cookingutensils #cooking #cookingisfun #cookingathome #mombloggers #bloggermom #bloggermoms #discount #discountcode #design #designessentials
#LupusNews ・ “This history-making clinical trial is the first successful study after decades of attempts with other #lupus nephritis therapies.” - Dr. Furie, professor at the Feinstein Institutes.🔬 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Northwell Health’s Division of Rheumatology and The Feinstein Institutes for Medical Research have announced the results from the largest Phase 3 lupus nephritis #clinicaltrial ever conducted. The groundbreaking results could lead to #Belimumab becoming the first drug approved by the U.S. Food and Drug Administration (FDA ) to treat #lupusnephritis , the most common severe complication of #lupusSLE that could lead to end-stage #kidneydisease . Tap our link in bio to learn more.
Stainless Steel Desert Spoons!🍴 •Limited Time Offer (129 for 6 pieces ) •Made from 100% High Quality Grade Stainless Steel •Well designed and having Smooth Edges DM now to order!🔥 . . . . . #amalgamate___ #cutlery #cutleryset #vintagecutlery #spoons #spoonscafe #spooncarving #spoonies #stainlesssteel #stainlesssteeltumbler #kitchenware #kitchenutensils #utensils #cookingutensils #cooking #cookingisfun #cookingathome #mombloggers #bloggermom #bloggermoms #discount #discountcode
Who has felt good one day and pushed themselves too far? It can be tempting when you feel good, but slowly adding more and more everyday is the way! . . #spoonie #spooniesupport #fibromyalgia #zebrastrong #chronicillness #chronicpain #chronicillnesswarrior #chronicfatigue #fibrowarrior #butyoudontlooksick #spoonies #dysautonomia #chronicfatiguesyndrome #chronicpainwarrior #spooniestrong #ehlersdanlossyndrome #chronicallyill #rheumatoidarthitis
We’ve posted this before but we love it so much, it deserves a repost! How will you create some happiness this weekend? 🌟 • • • #infusionday #shareyourchair #chronicillness #spoonie #spoonielife #spooniesupport #spoonies #happiness #crohnsdisease #crohnswarrior #ulcerativecolitis #ulcerativecolitisfighter #multiplesclerosis #multiplesclerosisawareness #remicade #entyvio #stelara #ocrevus #tysabri
Contemplate the might inside . . . . . . . . . . . . . #spoonies #spoonie #migraines #chronicfatiguesyndrome #chronicpainwarrior #Dermatomyositis #mentalhealth #chronicpain #invisibleillnessawareness #butyoudontlooksick #spoonielife #nononeunderstands #chronicfatige #hurtinginside #cantwalk #brainfog #chronicillness #chronicpain #invisibledisability #autoimmunedisease #butyoudontlooksick #babewithamobilityaid #fibromyalgia #dermatomyositis #chronicallyawesome #hiv #cervicalcancersurvivor
ɪ ᴡᴏᴋᴇ ᴜᴘ ᴛʜɪꜱ ᴍᴏʀɴɪɴɢ ᴀɴᴅ ᴍʏ ʙᴏᴅʏ ꜱᴀɪᴅ “ɪ ᴛʜɪɴᴋ ɪ’ʟʟ ᴄᴀʟʟ ᴛᴏᴅᴀʏ ꜰʟᴀʀᴇ ᴜᴘ ꜰʀɪᴅᴀʏ.” 🤔 ꜱᴏ ʜᴇʀᴇ ᴡᴇ ᴀʀᴇ 😢 #endo #theendolifestyle #endostrong #endosupport #femaledoctor #womenshealth #spoonies #spoonielife #adenomyosis #periodproblems #femaleempowerment #endometriosiswarrior #chronicpain #chronicillness #endobelly #periodpain #mentalhealthmatters #endometrios #butyoudontlooksick #invisibleillness #1in10 #bloatedandbeautiful #speakupspeakendo #endoawareness #pelvichealth #pelvicpainsupport #endometriosisawareness #thefutureisfemale #pelvicfloor
My illness makes living the life I desire extremely difficult. Comment below if you feel similar. Follow us @how .u.feeling for more post about living with a chronic or mental illness. Our DMs are always open. Come introduce yourself to us and if you ever need to chat or vent we are always avail. We will do our best to respond to each one of you. You are not alone in your fight ❤️
I have spoke about this before but I think it’s important to be vulnerable, to share experiences, and to show others that they are not alone. I’m not sure if any of you can relate to this at all but for me, living with a chronic illness has rocked my self confidence. I question myself quite often. This can range from questioning my ability to have a successful future in the work force and be a functional human being to my ability to run this page. This then hurts my self-esteem and raises my anxiety. It’s a vicious cycle I face daily. This is something that I continually try to work on and I hope that if you suffer from this too, we can all improve together. Love you all. Follow us @how .u.feeling for more post about living with a chronic or mental illness. Our DMs are always open. Come introduce yourself to us and if you ever need to chat or vent we are always avail. We will do our best to respond to each one of you. You are not alone in your fight ❤️
The wonderful barber, Jacob ( @jacobs_cuts ) @trailheadbarbershop shaved my head today for free. 💈 I COULD NOT BE HAPPIER!!! I've never felt better after ANY haircut in my life. My neck pain is GONE. I FEEL FREE. I feel beautiful, and empowered as fuck. Today I took my power back. These diseases cripple me and make every aspect of my life excruciatingly difficult. Why continue to suffer and adhere to societal standards of what constitutes beauty? I am donating my hair to Children with Hair Loss. @cwhl_org 💟 Reasons: 1. I don't need reasons 2. Chemotherapy 3. Trigeminal Neuralgia 4. Occipital Neuralgia 5. Chronic Fatigue 6. Less shampoo 7. Chronic fevers 8. Degenerative Disk Disease 9. I'm a Viking 10. Bald is supreme Only regret - that I didn't do this sooner. #baldwoman #baldfade #spooniesupport #spoonielife #chemotherapytreatment #cutpasslove #baldisbeautiful #chemotherapysupport #chemotherapy #trigeminalneuralgia #chemotherapysideeffects #baldhead #spooniewarrior #bald #spoonies #braintumor #hairdonation #newhairdontcare #spoonie #spooniesunite #spooniestrong #chemotherapysucks #Paintudes #occipitalneuralgia #raredisease #chronicfatigue #autoimmunedisease #chronicpain #chronicallyill #vikings www.hannahcrazyhawk.com
It’s okay to stick up for yourselves when you see your doctor. Even though we always view doctors as helpful and important resources in our lives, that doesn’t mean they can’t be wrong/hurtful. You know your body better then anyone and if you feel that your doctor is misdiagnosing you or ignoring your symptoms then it’s vital to stick up for yourself. Follow us @how .u.feeling for more post about living with a chronic or mental illness. Our DMs are always open. Come introduce yourself to us and if you ever need to chat or vent we are always avail. We will do our best to respond to each one of you. You are not alone in your fight ❤️
When you spend 10 minutes outside being active and spend the next three days paying for it 😩 I mostly just get out for doctors appointments at this point 🤦♀️ #dysautonomia #dysautonomiaawareness #dysautonomiawarrior #potssyndrome #potsawareness #pots #invisibleillnessawareness #invisibleillness #disability #disabilityawareness #invisibledisability #butyoudontlooksick #notaburden #chronicillness #chronicpain #spoonie #spoonielife #spoonies #spooniestrong #spooniesupport #spooniesisterhood #chronicillness #chronicpain #chronicfeed #potsie #potsielife
You can say that again 🙄
Do you ever wonder what people are really thinking when you are honest about your condition? 🗣 - When you’re honest with your answer and say ‘no I’m not ok’, or your answer to a casual ‘ what have you been doing?’ is pretty much... I’ve been doing nothing because of yet another medical reason. - Do you wonder if people outside of others that suffer, see your Instagram and think it’s dramatic or attention seeking? Could being honest about my struggle might change peoples perceptions on my abilities and maybe change a future opportunity for me? - Could me being honest and real and raising awareness actually jeopardise me? Are my friends and family tired of my honest answers? Do people not want to be around me now I’m being honest about an everyday fight? - I am still me, the same person from 9 months ago who could do everything I was doing before I started being more open about my chronic illness. I still have the same sense of humour, the same drive and determination, the same work ethic, the same love and empathy.. all of me is the same I am just finally being honest. - I started thinking this today when a girl popped into my head from years and years ago. I didn’t know her personally but she posted a lot about her condition, she’d post photos in a hospital bed and write about how much she was struggling. People would comment on her posts being abusive about the fact she’d been out a few nights before and tell her she was bringing it on herself. People were horrible to her and about her, often. I actually never see her talk about it anymore and that makes me sad. - People are so cruel and narrow minded, thinking about the things I have written in this post and writing down my anxieties make me realise that people outside of this little bubble DONT get it, and that’s EXACTLY why more people need to speak up, it’s why I do do this and exactly why WE shouldn’t stop. People will always think the things I’ve written in this post until it becomes normal to be open, unjudged. - Chronic & mental illness is EVERYWHERE, and we have to advocate for ourselves and our NORMALITY until there is no room for the people who won’t adapt and accept it ✋🏼🤍
AUTOIMMUNE SISTER STORY // Caprice lives with an incredibly rare disease and today she is sharing her story of hope and goodness that can follow the broken. MEET CAPRICE ♥️ Hi! My name is Caprice, I am a mom of two littles (4 and 2 ). We live just outside of Chicago in the western suburbs. I love to garden, sing, and spend time with my friends and family. I’m taking life day by day trusting and hoping in Jesus. DIAGNOSIS 🌡 I was diagnosed with Necrotizing Myositis in October of 2019. After a miscarriage in September of that year I started noticing some weakness in my legs. Fast forward five weeks and I was in the hospital struggling to walk and with ck levels in the 20,000 (ck is the amount of muscle protein found in your blood ). After two weeks and lots of testing I was diagnosed with Autoimmune mediated necrotizing myopathy. To finish reading her story: 1️⃣ Click the link in our bio 2️⃣ Scroll down and select Caprice’s Autoimmune Story Find Caprice @Capricesuzanne LINK 🔗 https://autoimmunesisters.org/caprices-autoimmune-story/
ALGORITHM👀 - I swear the Instagram algorithm only seems to push my face and my scar (naked skin ).... or maybe it’s because that’s what everyone prefers 😂🤷🏼♀️ - I’m definitely not here for the ‘likes’ or followers but I am here to get various messages out and raise awareness and sometimes I write a really important message (to me lol ) and it just doesn’t get pushed sooooo you may see more of this face I’m afraid, 🤦🏼♀️✌🏽💗 - I’ve seen a few people talk about this and I’ve always noticed since starting this account, I’ve always had amazing engagement which I’m grateful for but I certainly notice the difference if I post a pretty scenery photo or quote than if I post myself. - I then watched ‘the social dilemma’ on Netflix ( I HIGHLY recommend ) and it’s just crazzzzzyyyyy how social media like Facebook, Instagram, etc have us and it shows everything they do behind the scenes to ensure that happens! It really can warp your mind, your news feed follows your own narrative, tells us we are right, shows us fake news to go along with our own narrative.. even to do with things that are happening in the world like Covid at the moment! It really made me want to take everything online with a pinch of salt! - I had a loooong break a good while ago and ever since I’ve always easily been able to put my phone down. I know I say this a lot but remember to snap back into reality sometimes as your news feed is really catered to keep you HOOKED...❤️ - I’ve also seen a lot of the google search images on here, which the social dilemma confirmed when you do a google search they’ve actually collated information on things you’ve previously read about and researched, it isn’t actually the most searched! E.g if you were to write ‘is global warming real’ we would all receive completely different search results. Go and watch it if you haven’t already !!! THE SOCIAL DILEMMA - NETFLIX. It’s much better than my ramble 😘 - And then go for a walk ok 👀😆